…at all. I’ve been working like a mad fiend hound on finishing our bonus room so we can get the house on the market. I’ve pretty much been working on it for the last 2 weeks, every day, every spare moment. Hopefully it’ll be done by this Friday and we can get the house on the market and get moved to Columbus before the baby comes. Hopefully.
We did have another doctor’s visit this past week to check on the baby. The news wasn’t great, but we’re still hopeful. Basically put, when babies are in the mothers womb, there’s a hole in the septum between the upper chambers of the heart that allows blood to mix between the chambers. The hole is there naturally and closes after birth. A baby with Hypoplasic Left Heart Syndrome (HLHS), which is what our baby has been diagnosed with, needs this hole after birth to allow blood to mix and to find its way to the lungs.
Well on Wednesday we found out that this hole is much smaller than it needs to be and there’s no blood mixing back and forth. That’s not good. It means that there will probably have to be an emergency procedure done on the baby immediately after birth. They will have to go in and put in a heart catheter to open that hole to allow blood to flow back and forth until they can go in and do the first of the three heart surgeries to repair the HLHS.
We’re defying odds here. Out of 100 babies born, 1 might have congenital heart defects, which might be a heart murmur or it might be HLHS. HLHS is probably one of the rarest of the congenital heart defects, and probably the most dangerous, from what I can tell. Out of 100 HLHS babies born, maybe 10 have this obstructed atrial septum, which is what we found out on Wednesday. So if it is rare and dangerous, we’ve got great odds for it. In fact I’m thinking our odds are pretty good at birthing some kind of rare rattlesnake, that seems to be the way the odds are going.
Look, I’ve never been overly outspoken on my Christian faith on this site, but we’re really having a hard time with all of this. Where is God? We’ve prayed for 4 years for a healthy baby. We’ve prayed every day for this baby we currently have. What’s going on? It feels as if he’s absent, just standing by. I know for you non-believers out there you’re probably saying, "see…told ya." However, I’ve seen too many acts of divine intervention to write God off. My dad was miraculously healed of terminal cancer overnight, after praying for healing. So…I kinda can’t just disregard that.
But I’m not seeing God in this. I’m not seeing purpose in this, and I’m having a hard time. If this baby doesn’t make it, I’ll have a very hard time defending God to those that don’t believe. This is our trial, our struggle, our Lazarus, and if something doesn’t happen….it just wouldn’t be good. So, that’s me being honest, saying the things you’re not supposed to say as a Christian.
As a Christian, you’re supposed to say, "it’s dark, but I know God’s light is gonna shine","I know God has a purpose for all of this", "I’ll have faith in His sovereignty". I’m not saying that and I don’t really need to hear that from other people.
So God, here’s your chance to do something huge, something that’s unexplainable. There are tons of people praying for this baby and tons more awaiting the outcome. What’s it gonna be?